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Moving Mountains: Parents and Families Driving Research in Rare Disease
Featured Speaker: Stephanie Snow Gebel, founder, Snow Foundation
Stephanie Snow Gebel is the founder of the Snow Foundation, a voice for rare disease that is working towards a cure for Wolfram Syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. Hear one family’s story and join a discussion about how you can motivate and engage the research enterprise. Washington University researchers, Fumi Urano, M.D., Ph.D., and Tamara Hershey, Ph.D., who have collaborated closely with the Snow Foundation, will also be present for the discussion.